BD4P Training Workshops

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The BD4P Training Program will facilitate meaningful participation in biomedical big data research efforts and initiatives by equipping trainees with the knowledge, skills, and tools needed to both navigate and impact health research, policy, and funding decisions. The Program will be launched with three 2 1/2 day, in-person training workshops aimed at patient advocates who are interested and active in big data work.

Outcomes

The goal of the BD4P Training Program is to ensure that the patient voice and patients’ needs are central drivers of big data research efforts in biomedicine. Program participants will engage in lecture, discussions, and activities about the what big data is, how it is being used, and its impact on patients. Relevant topics – such as data sharing, data access, privacy, and consent – will be explored using real-world case examples in a learning structure that is tailored to adult learners.

Program Objectives

The training course and curriculum are focused on four main program objectives:

  1. Increasing awareness of big data research and how those efforts affect patients
  2. Enhancing scientific literacy in the basic concepts and key vocabulary of big data
  3. Developing a community of informed and empowered patient advocates
  4. Building a community of practice that encourages patient participation and information exchange

 

Training Workshop Details Announced

Training #1

October 13-15, 2016
Kellogg Conference Hotel at Gallaudet University
Washington, DC
BD4P Training Workshop Agenda 

 Training #2

More location details will be announced soon

 Training #3

More location details will be announced soon

 

More Information

Slides from our 8/16 Stakeholder Webinar, with details about the BD4P program and information about the applications for the first training workshop, can be found here.

Reagan-Udall Foundation Hosts First BD4P Training Workshop

October 24, 2016: The Reagan-Udall Foundation for the FDA (RUF) hosted the first Big Data for Patients (BD4P) Training Workshop on October 13-15 at Gallaudet University in Washington, DC. Read the full article here.