The BD4P Training Program will facilitate meaningful participation in biomedical big data research efforts and initiatives by equipping trainees with the knowledge, skills, and tools needed to both navigate and impact health research, policy, and funding decisions. The Program will be launched with in-person training workshops aimed at patient advocates who are interested and active in big data work.
The goal of the BD4P Training Program is to ensure that the patient voice and patients’ needs are central drivers of big data research efforts in biomedicine. Program participants will engage in lecture, discussions, and activities about the what big data is, how it is being used, and its impact on patients. Relevant topics – such as data sharing, data access, privacy, and consent – will be explored using real-world case examples in a learning structure that is tailored to adult learners.Program Objectives
The training course and curriculum are focused on four main program objectives:
- Increasing awareness of big data research and how those efforts affect patients
- Enhancing scientific literacy in the basic concepts and key vocabulary of big data
- Developing a community of informed and empowered patient advocates
- Building a community of practice that encourages patient participation and information exchange
Second BD4P Training Workshop
The second BD4P Training Workshop will have a new format and include independent pre-work sessions, two mandatory webinars, and a 1 3/4 day in-person training workshop.
The mandatory webinars are scheduled for April 4th and 18th, and the in-person workshop will take place April 25-26, 2017, at the Powell Tate Event Center (733 10th Street NW) in Washington, DC.
The agenda for the second training, including the independent and in-person modules, can be found here: BD4P Draft Training Workshop Agenda.
Applications are currently being accepted for the second workshop!
Please fill out the BD4P Training Participant Application (fillable form PDF)/(Word document version) and submit to BD4P@reaganudall.org by the end of the day Tuesday, March 28th. Applicants will be notified about their acceptance by Friday, March 31st.
There is no fee associated with registering/participating in the training workshop and lodging will be available if needed. Travel scholarships for participants will be available depending on funding and the number of requests for assistance received.
For more information, or if you have any questions, please contact the BD4P program coordinator at DLChavarria@reaganudall.org.