BD4P Training Workshop – April 2017

Welcome to the resource page for BD4P! Here you will find posted materials and resources for the workshop.



Informative Resources

The following external sites provide some background information to help clarify the concept of “big data” and provide instances of big data use. It will be updated as new information is received:

  • What is Big Data?
    • NIH BD2K site – link
    • DataScience@Berkeley blog – link
    • Big Data: Biomedicine (BD2K documentary film collaboration with USC’s Keck School) – link
    • “What Netflix can teach us about treating cancer” (link to The Conversation article)
  • Clinical Trials
    • Clinical Trials Transformational Initiative (CTTI) – Dr. Robert Califf on “Clinical Trials on the Path to Transformation” (webinar) – link  
    • PhRMA Principles for Responsible Clinical Trial Data Sharing (link to PhRMA post)
  • Legal & Ethical Issues
    • “Your Cells. Their Research. Your Permission?” (link to New York Times article)
    • “When Henrietta Lacks had cervical cancer, it was a ‘death sentence.’ Her cells would help change that.” (link to Washington Post article)
  • “Ten simple rules for responsible big data research” (link to PLoS journal article)
  • “The big-data revolution in US health care: Accelerating value and innovation” (link to McKinsey & Company article and report)
  • “Lyme Patients are Bending the Old Rules for Scientific Research, To the Dismay of Some Scientists” (link to Buzzfeed article)

Case Study Overviews

Reading Recommendations

  • Module 4: Advocates & Other Big Data Stakeholders
    • The Cuckoo’s Egg: Tracking a Spy through the Maze of Computer Espionage by Clifford Stoll
    • Too Big to Ignore: The Business Case for Big Data by Phil Simon
    • Malignant: Medical Ethicists Confront Cancer; edited by Rebecca Dressler
    • Weapons of Math Destruction: How Big Data Increases Inequality and Threatens Democracy by Cathy O’Neal