Improving the Collection and Curation of Race and Ethnicity Data in Health Care
Thursday, January 26, 2023
2-4 PM ET
Incomplete and inconsistent capture of information about race and ethnicity in real-world data (RWD) limits a full understanding of the distribution, safety, and effectiveness of FDA-regulated products, which impacts the health of the public.
The Reagan-Udall Foundation for the FDA, in collaboration with FDA's Office of Minority Health and Health Equity, launched RAISE to elevate the capture and curation of race and ethnicity data in health care settings to ultimately improve the quality of health care and medical products.
The first workshop in the RAISE series: Improving Race and Ethnicity Data in Health Care featured Dr. Georges Benjamin, Executive Director of the American Public Health Association and member of the FDA Foundation Board of Directors as the keynote speaker.
Review the pre-reads and reading list
Learn more about RAISE
AGENDA
2 PM Welcome
Speaker: Susan C. Winckler RPh, Esq, Reagan-Udall Foundation for the FDA
2:02 PM Welcome Remarks from FDA
Speaker: RDML Richardae Araojo, PharmD, MS, U.S. Food and Drug Administration
2:05 PM Keynote: Historic Framework and Call to Action
Speaker: Georges C. Benjamin, MD, American Public Health Association
2:20 PM Presentations
Opportunities to Improve Race and Ethnicity Data in Health Care
Nicole Evans, MPH and Hemi Tewarson, JD, MPH, National
Academy for State Health Policy
Health Data Standards in the Age of Digital Feudalism and the
Health Equity Movement
Gary A. Puckrein, PhD, National Minority Quality Forum
Improving race ethnicity and language data collection through
innovation: Mixed methods approach to advance health equity
Oscar Benavidez, MD, MBA, MPP, Massachusetts General Hospital
Innovative Payor Solutions
Deanna Fulp, MBA, Blue Cross Blue Shield of Massachusetts
3:20 PM Moderated Discussion
Moderator: Michelle McMurry-Heath, MD, PhD
Discussants:
Claudia A. Withers, JD, Civil Rights Corps
Georges Benjamin, MD
Nicole Evans, MPH
Gary Puckrein, PhD
Oscar Benavidez, MD, MBA, MPP
Deanna Fulp, MBA
3:50 PM RAISE: What It Is and Where We Are Going
Speaker: Carla Rodriguez-Watson, PhD, MPH, Reagan-Udall Foundation for the FDA
4 PM Adjourn